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Parenting a Neurodivergent Child – Why YOUR Self-Care Matters 

Parenting a neurodivergent child is a rewarding but demanding and challenging journey. Children diagnosed with neurodevelopmental conditions such as autism spectrum disorder (ASD), attention deficit/hyperactive disorder (ADHD), cerebral palsy, and other learning difficulties often need significant support from their parents or caregivers. The unique needs and experiences of neurodivergent individuals mean as a parent, you must be more resilient, patient, and compassionate when meeting their emotional, physical, social and learning needs.  

So when so much of your time and energy is spent caring for your child, it’s easy to forget about your own wellbeing. But self-care is essential for parents of neurodivergent children. In this blog post, we’re exploring the importance of self-care and giving you seven practical tips to help you prioritise your wellbeing while supporting your child. 

Why Self-Care Matters for Parents of Neurodivergent Children 

Parenting a neurodivergent child can be emotionally and physically draining. The constant demands, appointments, and advocacy for your child’s needs can leave you overwhelmed and burnt out.  

New Curtin University-led research has found: 

‘…that 80 per cent of caregivers experienced poor wellbeing, high levels of stress and poor mental health. More than 22 per cent also experienced negative stigma from their local community, increasing the feeling of social isolation.

Many parents don’t realise that self-care isn’t a luxury; it’s a necessity. Here’s why it matters:

You Can’t Pour from an Empty Cup

Cliché as it may sound, it’s true. If you’re not caring for yourself, you’ll have less to give to your child and your family. By prioritising self-care, you’ll be better equipped to provide the support and understanding your neurodivergent child needs. 

Stress Management

Parenting a neurodivergent child comes with unique stressors. Self-care techniques such as relaxation exercises, mindfulness, meditation, or even a simple walk can help you manage stress effectively. 

Modelling Healthy Behaviour

By practising self-care, you’re setting an example for your child. Observing your actions will teach them the importance of caring for their wellbeing.  

For example, there is an indication that mindfulness is effective for children on the autism spectrum, as it increases self-insight and reduces rumination and emotional reactivity. As a caregiver, modelling your own mindfulness strategies sets an excellent foundation for helping your neurodivergent child embrace mindfulness-based practices and therapies. 

7 Practical Self-Care Tips for Parents of Neurodivergent Children

Now that we’ve established why self-care is essential let’s explore seven practical tips to help you prioritise it in your daily life: 

 Schedule Regular “Me” Time 

Getting caught up in your child’s schedule, therapy sessions and school meetings is so easy. However, carving out dedicated time for yourself is essential. Schedule it on your calendar just like you would any other appointment. Make it non-negotiable whether it’s a few hours or even 30 minutes a day. And don’t be afraid to ask other family members or friends to help you.  

Connect with a Support Network

You’re not alone on this journey. Reach out to support groups, online communities, or other parents who are going through similar experiences. Sharing your challenges and triumphs with others who understand can be incredibly therapeutic.

For example, if you live in Canberra, there is an online group specifically for Canberra autism spectrum parents and relatives. With over 3.7k members, the group is specifically for people in the area who are relatives of, or are in an unpaid caring role for people on the autism spectrum and for those who are on the autism spectrum themselves. It is a place to connect with other people in the community, share information, useful links, handy hints – even good shows coming up on TV – anything that adds value to the community! 

Delegate When Possible

It’s okay to ask for help. Enlist the support of friends, family members, or trusted caregivers to share the responsibilities of caring for your child. Delegating tasks can free up time for self-care without feeling guilty.

Prioritise Sleep

Quality sleep is a cornerstone of self-care. Ensure that you’re getting enough rest to recharge your energy levels. If you have difficulty falling asleep, try meditation, sleep stories or white noise like that offered by the popular Calm app. If sleep issues are typical for your child, consider creating a sleep routine that benefits both of you.

Engage in Stress-Relief Activities 

Find activities that help you relax and relieve stress. This could be practising yoga, going for a run, journaling your thoughts, or enjoying a favourite hobby. Even short breaks during the day can make a big difference. Check out this article on 15-Stress-Reducing Activities You Can Do at Home for more ideas. 

Set Boundaries

Establishing healthy boundaries is vital. Communicate your needs to your child, partner, and anyone else involved in your child’s care. Let them know when you need time for self-care and ask for their support in respecting those boundaries.

Seek Professional Help

Don’t hesitate to consult a therapist or counsellor if you’re feeling overwhelmed or struggling to cope. Professional support can provide you with valuable tools and strategies to navigate the challenges of parenting a neurodivergent child. 

Parenting a Neurodivergent Child? Make Self-Care Your Priority

Parenting or caring for a neurodivergent child is a journey filled with love, challenges, and growth. While your primary focus naturally revolves around providing the best possible support for your child, it’s essential to recognise that self-care isn’t a selfish act; it’s a vital one.  

By taking care of your own wellbeing, you’ll be better equipped to support your child and family more effectively. Always remember that you’re an essential part of your child’s support system, and taking care of yourself allows you to be the best parent you can be. 

So, parents of neurodivergent children, listen up: your wellbeing matters, too. By practising self-care, you can continue to be the loving and supportive parent your child needs while maintaining your own physical and emotional health. It’s a win-win for both you and your child!  

Don’t forget – we’re here to help! If your neurodivergent teen or young adult loves gaming and they’re NDIS-supported – they can join us! While they’re busy making new friends, building their skills and doing something they love, you can schedule some much-needed ‘me time’. Sounds good, right? 

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Parenting

Transitioning Autistic Teenagers for Life Beyond High School: A Parent’s Guide

As a parent of a neurodivergent teenager, the journey through high school and beyond can bring excitement, apprehension and various challenges. As your teenager approaches graduation, it’s natural that you’ll start wondering how to best support them through their transition to adulthood. Your guidance and support will play a pivotal role in helping your child access the support and opportunities that allow them to live a fulfilling and more independent life beyond high school. This post dives into helpful tips and real-world insights, crafted especially for parents of autistic teenagers during this incredibly important phase of your child’s journey.

Understanding Your Teenager's Strengths and Interests

As parents, we often believe we know our children better than they know themselves. But, in reality, what we think we know, isn’t always the complete picture.

The first step in preparing your neurodivergent teenager for life beyond high school is better to understand their unique strengths, interests and talents. To do this, you’ll need to take the time to have open conversations with your child about their aspirations, hobbies and passions.

Transitioning Autistic Teens to life after high school - Photo of a mother talking to her daughter outdoors

Within the neurodiverse spectrum, Autism Spectrum Disorder (ASD) presents differently in everyone, but it isn’t uncommon for a diagnosed individual to have difficulty in their verbal or non-verbal communication skills. That’s why one conversation won’t be enough for most parents, so we encourage you to start talking with your child months before graduation.

Simply Spectrum provides valuable tips that may help you during these conversations, like:

  • Making an effort to initiate the conversation
  • Starting the conversation by talking to them about something they like or enjoy
  • Picking the best time to have a conversation (in the car is sometimes a great place as it’s not confrontational)
  • Remaining patient and showing empathy
  • Remembering that they’re still kids and they’re still development
  • Make a note of what works, what doesn’t work and use this for future conversations.

These discussions will provide valuable insights into potential career paths, areas of study, or vocational pursuits that align with their strengths.

Exploring Post High School Options

Once you clearly understand your teenager’s strengths and interests, it’s time to explore various post-high school options. These options could include pursuing higher education, vocational training, or for some autistic teens with low support needs, even entering the workforce.

It’s essential to consider your conversations with your child to determine the most likely path to success – something they’re good at and enjoy. My Way Employability is a good resource for exploring the strengths of your autistic teenager.

If you have difficulty identifying suitable options, visit the careers advisor at your child’s school. They’ll be able to talk to you and your child and uncover suitable possibilities after high school.

You might find it helpful to break your child’s goals into long-term and short-term ones. Raisingchildren.net.au provide valuable examples of how this can be achieved. For example, a long-term goal might be to gain employment in IT and to accomplish this goal, they might need to:

  • Establish a strong support network (mentor, family and friends)
  • Undertake further skill development, education or training
  • Participate in a Dandelion Program which embraces, supports and expands the skills of neurodiverse people to help them secure long-term, fulfilling IT careers.
  • Participate in work experience, volunteer work or an internship
  • Attend a club or social group to help them build soft skills like teamwork, problem-solving and social skills
  • Write a resume
  • Establish a support network
  • Sign up for the Disability Employment Service
Transitioning Autistic Teens to life after high school - Image of a teenage boy sitting at his desk with a notebook and desktop computer

There’s always a possibility that your autistic child will be faced with a bias or discrimination as they navigate life beyond high school. Many parents fear disclosing their diagnosis to peers, teachers or managers for this very reason. On the other hand, it could also limit your child’s ability to access the support they need, and their behaviours or difficulties might be misinterpreted. Many education programs and support services offer specialised support programs for autistic teens and young adults, which can greatly enhance their chances of success.

We encourage you to create a supportive environment that encourages their growth and development. Foster a sense of autonomy by involving them openly in decision-making and encouraging them to take ownership of their goals and aspirations while providing guidance and assistance when needed.

Developing Essential Life Skills

Preparing your autistic teenager for life beyond high school goes beyond academics. Equipping them with essential life skills is crucial for their independence and self-sufficiency.

Start by teaching practical skills such as budgeting, time management, cooking, and personal hygiene. Then, it makes sense to help them further develop their soft skills like communication, teamwork, friendships and physical health.

Autistics’ Guide to Adulthood is a free resource that you might find helpful. It has been co-designed by autistic adults and professionals and provides ten life-skills modules that can be accessed at your own pace and in a safe and fun online environment. Work through them with your child and remember open conversations and active listening will help you make the most of the content.

We also can’t pass up the opportunity to promote what we do here at Ignition Gamers. Social interactions and effective communication are vital aspects of navigating the adult world. Online gaming and esports benefit autistic teenagers with a passion for gaming. From participating as part of a team, building their social skills, managing their emotional regulation and further developing their cognitive and communication skills – our program starts with gaming but is so much more.

And we’ve seen firsthand how our clients have developed the confidence and skills to achieve their goals. For some, this has been moving on to further education and, for others, gaining meaningful employment.  

Developing a range of life skills will empower your teenager to navigate daily challenges and responsibilities confidently. Still, it will also improve their chances of success with study or in the workplace.

Advocating for Support Services and Encouraging Self-Advocacy

Throughout your teenager’s journey, it’s important to advocate for the support services they may need. Research available resources in your community, such as counselling, therapy, or mentorship programs. These services can provide valuable guidance and emotional support as your teenager navigates the challenges of adulthood.

One option worth considering is school leaver employment supports and education, which are National Disability Insurance Scheme (NDIS) supports available to students in their final year and preparing to leave secondary school. These supports help your child to develop the skills and confidence to move from school to employment with individualised support for up to 2 years after finishing school.

NDIS participants with an employment goal as part of their plan may also be able to access funding as part of their Capacity Building Budget. This could be used for an employment assessment, counselling, or other individualised services to assist your autistic child in finding and keeping a job.

Transitioning Autistic Teens to life after high school - Image of a teenager in an office, he's on a laptop with a whiteboard behind and sticky notes

We’ve also collated a list of 11 helpful resources for autism employment that you’ll find valuable.

It’s also important to empower your autistic teenager to become their advocate. Teach them to express their needs, preferences, and boundaries effectively. Encourage them to seek support, if necessary, in educational or work settings. Developing self-advocacy skills will enable them to confidently navigate various situations and environments.

Promoting Health and Well-being

A holistic approach to preparing your autistic teenager for life beyond high school includes promoting their physical and mental well-being. For autistic people, self-care is critical due to the sensory sensitivities and differences common among individuals on the autism spectrum.

Please encourage them to participate in activities they enjoy, as well as regular exercise, a balanced diet, and getting sufficient sleep. Stress-management techniques, like deep breathing exercises or mindfulness practices, can be beneficial. After all, a healthy body and mind are essential for navigating the challenges of adulthood.

Life Beyond High School for Autistic Teenagers

As parents of autistic teenagers, you play a pivotal role in guiding your child toward a successful and fulfilling life beyond high school. By understanding their strengths, exploring post-high school options, developing life skills, and fostering a supportive environment, you can empower your child to embrace the challenges and opportunities that lie ahead confidently.

Remember, each journey is unique, and your unwavering support will impact their path to adulthood. Together, you can lay the foundation for a future filled with growth, achievement, and happiness.

If you’d like to discuss any of the information in this post or want to understand how Ignition Gamers can help your neurodiverse teenager or young adult, book a free chat with us. We’d love to hear from you.